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Urinary Retention with Poor Voiding

Kidney & Bladder | Last Active: May 21, 2023 | Replies (5)

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@lucy155

I'm sorry to read of your problems with retention. I have had what you describe for a decade. My retention causes chronic UTI's. I have had two bladder surgeries to raise it into position hoping to create a better flow. Both started out OK, but then quickly failed and my poor flow and chronic UTI's returned. I have been on low dose antibiotics of various names, but nothing would keep the UTI's from returning as a result of poor flow or sometimes complete lack of flow. Recently I have been catharized as an emergency in the hospital and in the urologist office. Both times I had over 500 cc's of urine that I could not void. My bladder would cause horrible levels of pain and it is scary. Since the two emergencies, I have been taught to self catharize.... not pleasant, but better than an emergency room visit and, as my new urogynecologist told me, better than having even more serious issues with my kidneys as a result of serious retention.
I have recently been diagnosed with IC/Bladder Pain Syndrome because I do not always have a UTI when I have severe bladder pain and the inability to void. I think I'm on the path to managing this condition, using a pessary, a daily dose of amitriptyline for pain, and self cath when necessary. I am feeling better because I feel like I have some level of control back with the use of self cathing when necessary. This diagnosis and potential solutions are all new, within the last month, so I can't be sure the results are long lasting, but I'm happy to have some time of no pain. Don't give up. Change doctors if you don't get answers. My biggest regret was staying with a urologist that just kept prescribing anitbiotics for over ten years.

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Replies to "I'm sorry to read of your problems with retention. I have had what you describe for..."

I know its been a while. Feeling for your situation I wanted to write and tell you my dr found I was having chronic kidney infections and I have to retrain my bladder when voiding. She said most woman arent’ taught to diagphramatic breathing whiles tryin to go and retrain the bladder. Breath in deeply thru the nose extending the stomach then try to go while exhaling and keep repeating until positive results. I thought she was nuts. Breathing? oh my goodness. She is right. There is a medical term for it but in the end proper retraining this type of retention (we hold a lot of tension in our muscles) so this loosens them up to be able to go. I hope this helps you. I know you are coping with a very serious condition. I’m just hoping what my dr found can help you too.