Hello @jgk85 and @kruppm — welcome to Mayo Connect. I don't have Chronic inflammatory demyelinating polyneuropathy (CIDP) but do have small fiber peripheral neuropathy (SFPN). I only have the numbness with my SFPN so there are no medications/drugs that help me. I do take a regimen of supplement to help (hopefully) with the nerve repair/regeneration.

I am tagging other members who have posted in other CIDP discussions to see if they can offer suggestions for you. @gratefulone @jazzy27 @lindy1956 @suziep @mllucas @ginifuller @captnick @kdp3186 @5134177246 do you have any suggestions for @jgk85 and @kruppm ?

@jgk85 I see that you have been battling CIDP for a long time. Thank you for sharing what helps you and more. I'm hoping others will be able learn from you and share what they have learned also.

@kruppm thank you for being an advocate for your son. I'm sure it's not easy for him. There is a post by @jazzy27 earlier in the discussion about the use of another medication for lymphoma which mentions that it cured his CIDP. Here is the link in case you are not able to find it.

-- https://connect.mayoclinic.org/comment/99972/bookmark/?ajax_hook=action&_wpnonce=9f91777e48

If you want to ask a specific member a question just tag them with their @username and ask your question. That way they will receive an email notification and a link back to your post.

John