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Anybody want to talk about Progressive Supranuclear Palsy?

Brain & Nervous System | Last Active: Oct 19, 2023 | Replies (15)
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@anitah

I'm here! I just started looking for resources here on PSP and found this. I was just about to post basically the same thing you did.
My husband (53) was diagnosed about a year ago with PSP, while the onset of significant symptoms started about 2-3 years ago, in hindsight there were subtle symptoms for much longer.
What is your situation and experience with this disease?

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Replies to "I'm here! I just started looking for resources here on PSP and found this. I was..."
John, Volunteer Mentor | @johnbishop | Feb 21, 2023

Hello @anitah, Welcome to Connect. Hopefully @gamesjr will see your reply and share his experience with PSP. Have you done any research or seen the CUREPSP site listed above?

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Gene Ames, Jr. | @gamesjr | Feb 21, 2023

My experience with PSP is with a family member who developed vision, dizziness and balance problems which after about 2 years were diagnosed as PSP. With the exception of some falls, and problems driving a car and carrying things, he is doing pretty good.

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