I'm so sorry to hear you were diagnosed with MALS. It is a very painful and difficult diagnosis.
There is a website called. The MALS Foundation which is very helpful with how to handle MALS.
Also, Facebook has a great support page called MALS Awareness. It is an amazing page to learn and ask questions with real experience. But please be open minded because everybody body's and experiences may be very different.
MALS is a very rare diagnosis. There are not many doctors who know what it is or how to treat it.
I have had 29 tests and my gallbladder removed before I was diagnosed.
Stay positive. You need to be your own advocate to get things done. Please feel free to reach out to me. Good luck. 🙏🙏❤️