I have CIDP and have been receiving infusions of Previgen since July. I have my 5th infusion on Friday Sep 9th. I haven't had any results as of yet, however the visit with neurologist says my strength in my arms test better than in June. Evidently, the recovery is very slow.
If you want to send me a private message. I'm very interested in sharing and learning from other CID)P patients or caregivers. I'm going to a GBS/CIDP symposium the 22nd of September in San Antonio, TX they will be talking a lot about stem cell therapy for CIDP.

IVIG works for some in that they feel great for a week until the next infusion. I was doing IVIG other week for five years with no results. I finally told them I was quitting it was a waste of my two days a month. It’s so rare… is your son a child or adult? I’ve had it for 15 years. I see the first certified specialist in the world in Phoenix Arizona. I got very lucky. However even he hasn’t had many answers other than treat the symptoms. I have been on Vimpat forever & it make a difference. There are so many symptoms that are individual to each person with this disease that often doctor say they’ve not ever heard of that. And yet I find it in other groups that other people have the same things I do so it’s a crap disease. I don’t know if any of this is helpful but you can certainly hit me back