Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@malkahsheva

Thank you for your reply. Please let me know about the co-payment program. Evidently my doctor doesn't know about it. I asked her about 3 weeks ago, and she said she would look into it and never did. I start my first shot on Feb 27. Please keep in touch and let me know how it is going for you as well. Looks as if we are both starting the same journey.

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The co-payment program is through AMGEN Support. The phone # is 866- 264-2778. My MD enrolled me but I know you can enroll yourself. This Co-Payment works with both Evenity and Prolia. You have to be pro-active with not only your health but the cost of your treatments. Unfortunately having Osteoporosis is something we will be living with for the rest of our lives. I was diagnosed at 50 and I am now 61. I am lucky that I have had no fractures. I tried multiple medications in the past with no improvement. I have been off medication for 6 years.
Latest DEXA scan
Left femoral Hip T score is -3.4
Right femoral Hip T score -3.5
Spine T score -1.9

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@willow10

Everyone certainly reacts differently to medications, that's for sure. Sounds like you need to discuss your reaction with your provider and see if an adjustment can be made to make it less stressful on your body. Good luck and take care. Keep in touch, we're all going through this journey together

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I'm back on Prolia - one injection every 6 months.

Thanks for the concern.

hsum4

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@malkahsheva

Any idea where you could obtain eggshell powder? I am lactose intolerant so milk is definitely not an option for me.
Thanks to everyone in this group. Hearing all your voices has given me more confidence in this journey.

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Garden of Life Dr Formulated Stronger Bones has calcium derived from eggshell powder.
5 capsules = 1300 mg calcium
I've never taken that particular product but the company has some nice formulas overall and seemsto be reputable. I have not taken an eggshell supplement as I just make my own powder when I want to take it. It's very easy to make, you just have to be judicious in dosing so as not to overdo your calcium intake.

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@malkahsheva

Starting Evenity at the end of February and very concerned about the side effects. Have already fallen once and broke my femur and have scoliosis. I am also concerned about the costs. Any suggestions about handling side effects? My insurance is only going to cover 80% of the $2000+ costs

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https://www.evenity.com/paying-for-evenity

For more information about this program including full Terms and Conditions and eligibility requirements, call 1-800-761-1558 or visit EVENITYSupport.com.

Eligible commercially insured patients can lower out-of-pocket costs with the EVENITY® Co-Pay Program

Pay as little as $25 per dose with the EVENITY® Co-Pay Program§§

Pay as little as $25 for each dose of EVENITY® up to an annual Maximum Program Benefit per calendar year§§
Can apply to deductible, co-insurance, or co-pay for EVENITY®, but not costs associated with office visit or the administration of EVENITY®***
No income eligibility requirement
Other restrictions apply

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Hi, I was recently dx with osteoporosis with a spinal T-score of -3.0; the recommended treatment is Evenity. I am concerned about the side effects and would prefer to try a more conservative approach for the next 10 months and have a bone density and labs repeated at the end of 2023. Does that make sense to those of you in a similar situation? I had a wrist fx in 2022 due to fall on ice which I don't necessarily view as related to the osteoporosis. I would appreciate any advice you have. This is a tougher decision than expected! Thanks

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It’s scary to discover that you have osteoporosis but it’s important to take strong action as soon as possible. Evenity is new so doesn’t have a long history regarding side effects. That said, though I do not like getting these monthly injections I believe that this bone building treatment is best. Also, to further help your condition severely limit alcohol intake and do daily weight bearing exercises. Good luck

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@solveigsp

It’s scary to discover that you have osteoporosis but it’s important to take strong action as soon as possible. Evenity is new so doesn’t have a long history regarding side effects. That said, though I do not like getting these monthly injections I believe that this bone building treatment is best. Also, to further help your condition severely limit alcohol intake and do daily weight bearing exercises. Good luck

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Thanks for your response. Are you on Evenity? If so, how is it going for you? Blessings

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@carlajg

Hi, I was recently dx with osteoporosis with a spinal T-score of -3.0; the recommended treatment is Evenity. I am concerned about the side effects and would prefer to try a more conservative approach for the next 10 months and have a bone density and labs repeated at the end of 2023. Does that make sense to those of you in a similar situation? I had a wrist fx in 2022 due to fall on ice which I don't necessarily view as related to the osteoporosis. I would appreciate any advice you have. This is a tougher decision than expected! Thanks

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It really is a tough decision that many of us struggle with so I completely understand your hesitation and concern.
My bone loss was all in my spine and I did not want to take medication, believing that I could improve my bone density naturally with greater attention to my health. My diet was already extremely healthy and I exercised daily but I thought I could increase my exercise and pay even greater attention to my diet to gain back some of my loss. During that time, I suffered tremendous bone loss. Biggest mistake of my life delaying medication.
We are all different but from my experience and everything I've read, you just can't build back bone after menopause without medication. I ultimately chose to go on Forteo since it predominantly builds the spine and I had some increase in density. Not as much as I had hoped but at least their was gain and not continued loss. I had no side effects. The best part of being on it was that for 2 years, I didn't think about or constantly worry about my bones. That in itself was a great relief.

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@teb

It really is a tough decision that many of us struggle with so I completely understand your hesitation and concern.
My bone loss was all in my spine and I did not want to take medication, believing that I could improve my bone density naturally with greater attention to my health. My diet was already extremely healthy and I exercised daily but I thought I could increase my exercise and pay even greater attention to my diet to gain back some of my loss. During that time, I suffered tremendous bone loss. Biggest mistake of my life delaying medication.
We are all different but from my experience and everything I've read, you just can't build back bone after menopause without medication. I ultimately chose to go on Forteo since it predominantly builds the spine and I had some increase in density. Not as much as I had hoped but at least their was gain and not continued loss. I had no side effects. The best part of being on it was that for 2 years, I didn't think about or constantly worry about my bones. That in itself was a great relief.

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That is very helpful. I also eat very healthy and exercise 5-6 x week. I will take your experience to heart and reconsider my initial reluctance. I will also investigate Forteo since the spine is primarily where my bone loss is as well. Thanks so much for sharing.

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@betsee
https://www.evenity.com/paying-for-evenity

For more information about this program including full Terms and Conditions and eligibility requirements, call 1-800-761-1558 or visit EVENITYSupport.com.

Eligible commercially insured patients can lower out-of-pocket costs with the EVENITY® Co-Pay Program

Pay as little as $25 per dose with the EVENITY® Co-Pay Program§§

Pay as little as $25 for each dose of EVENITY® up to an annual Maximum Program Benefit per calendar year§§
Can apply to deductible, co-insurance, or co-pay for EVENITY®, but not costs associated with office visit or the administration of EVENITY®***
No income eligibility requirement
Other restrictions apply

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betsee, what other osteoporosis meds did you try prior to Evenity?

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