Hi bellsina71 ,
Stop, Take a Deep breath….
MANY have this and you have found a great support group right here! Also, know that this is NOT a death sentence- many of the people you will talk with on this forum have had this disease for decades. It is a chronic condition however and categorized as rare, so that does make it a challenge. The best advice I can give you is to do your homework and find out as much as you can about the type of NTM you have. You must step up and be your own health advocate; get educated😀 This forum is a great help and resource! Also,
NTM info.org has tons of info and webinars.
Lastly, here is the hope…..,
I have MAC and Bronchiectasis and after 6 months of treatment, my last bronchoscopy showed NO MAC. That’s called Culture conversion and the first step to remission!! Please don’t let the negative overwhelm you. You will have to make some lifestyle changes most probably but you have already faced Cancer. YOU GOT THIS!!
All the Best,
Dee