← Return to Anyone taken Evenity (romosozumab) for Osteoporosis?

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@carlajg

Hi, I was recently dx with osteoporosis with a spinal T-score of -3.0; the recommended treatment is Evenity. I am concerned about the side effects and would prefer to try a more conservative approach for the next 10 months and have a bone density and labs repeated at the end of 2023. Does that make sense to those of you in a similar situation? I had a wrist fx in 2022 due to fall on ice which I don't necessarily view as related to the osteoporosis. I would appreciate any advice you have. This is a tougher decision than expected! Thanks

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Replies to "Hi, I was recently dx with osteoporosis with a spinal T-score of -3.0; the recommended treatment..."

It really is a tough decision that many of us struggle with so I completely understand your hesitation and concern.
My bone loss was all in my spine and I did not want to take medication, believing that I could improve my bone density naturally with greater attention to my health. My diet was already extremely healthy and I exercised daily but I thought I could increase my exercise and pay even greater attention to my diet to gain back some of my loss. During that time, I suffered tremendous bone loss. Biggest mistake of my life delaying medication.
We are all different but from my experience and everything I've read, you just can't build back bone after menopause without medication. I ultimately chose to go on Forteo since it predominantly builds the spine and I had some increase in density. Not as much as I had hoped but at least their was gain and not continued loss. I had no side effects. The best part of being on it was that for 2 years, I didn't think about or constantly worry about my bones. That in itself was a great relief.

In response to your concern on starting on Evenity, it is a very tough decision. I feel some MD's are quick to put you it because it is the newest medication out there for Osteoporosis. You need to do your own research regarding all the medications available. As I have said in other posts, you need to be well educated on this condition. I agree that you might want to try a conservative approach first: increasing your Calcium, Vitamin D ( depending on your lab results) doing weight bearing exercises to see if that helps your DEXA numbers before starting on any medication. Have you thought about getting a second MD's opinion? Everyone reacts to medications differently, I wish you well in your journey. I had my first set of Evenity injections yesterday.... so far so good just minor side effects that I can live with. For me I had no other option.