← Return to Long Time Survivor With Concerns re Metastasis

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@gneiss50

I saw the hematologist. She recommended that I go to MD Anderson for review and possibly PRRT treatment, because, she said, she does not have the original 2010 pathology report from my treatment at Mayo. My current seratonin level was 1236, and my 5HIAA test was low, which seemed odd, she said. My Chronagranin A level was very high. Apparently I cannot get into MD Anderson for several months, and I am very concerned about postponing treatment that long. Even though my doctor suggested MD Anderson, I think I am going to reach out to Mayo Jacksonville tomorrow to see if they can give me an idea of how soon I can get in there. Thanks for listening to my frustration!

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Replies to "I saw the hematologist. She recommended that I go to MD Anderson for review and possibly..."

@gneiss50, did you contact Mayo Clinic in Jacksonville? As you know Jacksonville has some of the best NETs specialists in the country. Here's the contact info if you don't have it already http://mayocl.in/1mtmR63

How are you doing?