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Lost with no confirmation of NETs origin: Innumerable liver lesions

Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)
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@sueannsellers

Thank you for sharing what your nurse said - it gives me a litle more hope. I am hoping that the lung tumor can also be removed, but the doctor isn't as hopeful about that one. He is conferring with Mayo about that one.

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Replies to "Thank you for sharing what your nurse said - it gives me a litle more hope...."
lastround | @lastround | Feb 21, 2023

For what its worth, I would go to Mayo asap.
I wouldn't want someone practicing on me. I'm on my 3rd hospital, was written off by the first two last year.

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bluedane | @bluedane | Feb 22, 2023

Hi Sueannsellers, You are welcome yes that nurse practitioner's words very helpful and reinforced in much reading and lectures. Yes I have the carcinoid in my lung this can be more tricky - keep getting info and opinions. Thank you for your response and best of luck to you! Definitely stay hopeful and knowledge is so important. Helps a lot to hear other persons journeys. Take care.

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