← Return to Lost with no confirmation of NETs origin: Innumerable liver lesions

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@hopeful33250

Hello @bluedane and welcome to the NETs discussion on Mayo Clinic Connect. I am so glad that you were able to be seen at Mayo Clinic. It sounds like this was a better experience for you than that of the original doctor that you saw.

I have had three surgeries for NETs (over the last 20 years) in the duodenal bulb, with no apparent metastasis. I am also asymptomatic.

You were inquiring about anyone who has had "bland liver embolization." We do have other members who have discussed this procedure including @sturns
@sophiarose and @trivia. I hope that they will post with you about their experience with this treatment.

I'm glad that you have done a lot of research on this topic. NETs aren't something that come up in ordinary conversation, so it is important to be proactive and research as much as possible.

Has your medical team suggested bland liver embolization as the next step in your treatment?

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Replies to "Hello @bluedane and welcome to the NETs discussion on Mayo Clinic Connect. I am so glad..."

I recently had a bland embolization for liver metastasis 5 weeks ago
They did my right side since that was the worst
If it worked which I will know after my April MRI I will have my left side done
The procedure was done through my left wrist and was not invasive at all
I had minimal pain didn’t need pain meds for a few days
I was extremely fatigued for weeks
My carcinoid symptoms were a little out of control
However!!!
This week (5th week) was my turning week and I
feel fine
Please use the support groups get all the information and support you can get the groups have given me such a piece of mind and direction
They are truly amazing
Good luck

The video you posted, how do I contact his office? What hospital does he work from?