I was just diagnosed with Nutcrackers Syndrome, I have been searching for answers to my forever worsening condition, I believe after reading about this rare condition I have had it all my life , but now it’s caused me to become bedridden. I’m searching for other people who have been diagnosed with this and let me know what treatment they did to help

So sorry to hear about her findings, who, what, and where did she get treated? Can you tell me if she was diagnosed with all 3 at one time and with only 1 Test? I hat a CT w contrast a couple weeks ago that says Nutcracker Syndrome but since I’m not able to see any vascular surgeon till April. I think I have DVT too in my left leg, but they still haven’t been able to rule out, further test needed apparently, my
regular doctor doesn’t know anything about any of this stuff, and I was horrified after being taken into the ER after my husband called 911 only to be negligently taken into be told by the ER doc I would have to follow up without so much as an physical exam,. EMT who took me by Aid car told ER I was experiencing Chronic Back and sciatica and to would need to see a physical therapist. They wouldn’t listen to me and my husband. I feel like I am going to die and nobody has the experience to know what this is, and there is No way I will go to the ER after what happened a couple weeks ago, I’m still traumatized seriously 🧐, I am getting worse every day now, the pain is unmanageable, I am bedridden , and have filed a amendment to ER negligent visit. Thank you for any good advice to help me