Your story is like mine ! Pain and stiffness in both legs. The rheumatologist in Rochester recommended Cymbalta but I said “no” to that. I will be getting a nerve function test on March 2nd. Who knows what that will or will not show up. I am on hydrocodone for pain but can’t be on that forever. Gradually getting off the prednisone ( at. 6 mg right now) will take 11 more weeks to get completely off. See the originally said my pain was from osteoarthritis in my hips. Then after 18 months of suffering I could no longer walk easily and the diagnosed me with PMR. Now after seven months of prednisone ( the pain came back after I was reduced to 20 mg) now they say they misdiagnosed me again. They think it may be fibromyalgia but I totally disagree as my pain is not all over, just in my legs and hips. That is where they offered me the Cymbalta. No thank you.
I have been seeing a nurse practitioner in a holistic clinic in Burnsville Minnesota. She has been really on top of everything and I think I might be making some headway. She has me on a no sugar, no gluten diet. I am still on dairy for the time being as due to the prednisone I now have substantial thinning of the bone plus osteoarthritis where 18 months ago I only had osteopenia. She changed my thyroid medication from levothyroxine ( T4) to a combination medication of both T4 and T3. I feel a bit more energized. She also gave me a list of supplements which I am slowly incorporating in my diet. Let me know your thoughts about our situation as there must be an answer somewhere for us.