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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Replies to "You definitely made the right decision. The only way to get the correct treatment is via..."
I was diagnosed with Pmr in July 2019, per high crp and sed rates. It took the Dr 5 months to come to that conclusion. My extreme pain began almost suddenly the prior January. I struggled getting out of bed and movement was very painful. My sister had warned me of our family history of PMR, when she was diagnosed a few years before me and our father also struggled with it late in life. We're both in our 60's. I was treated with prednisone for 2 years but I also have GCA. So I got off prednisone in 2021 after starting Actemra treatments 6 months before tapering off prednisone. I'm in my 4th year of Actemra infusions, tapering down to an infusion every 3 months. I still have shoulder, neck and hip pain, soreness, but I take Tylenol to get through the days. I feel best when I walk or ride bike, just keep moving. The couch is not your friend. Thank you for your help and for listening. Good luck to us all.
Yes thank you
I was so glad to receive your message last night while I was here to actually confirm my decision .
Still waiting for biopsy
Will keep you posted
So grateful to you for your response..THANK YOU