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@khmc

You definitely made the right decision. The only way to get the correct treatment is via the biopsy. Once the inflammation under is control then you can researh options for continuous medicine. I chose Actemra.

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Replies to "You definitely made the right decision. The only way to get the correct treatment is via..."

Yes thank you
I was so glad to receive your message last night while I was here to actually confirm my decision .
Still waiting for biopsy
Will keep you posted
So grateful to you for your response..THANK YOU

I was diagnosed with Pmr in July 2019, per high crp and sed rates. It took the Dr 5 months to come to that conclusion. My extreme pain began almost suddenly the prior January. I struggled getting out of bed and movement was very painful. My sister had warned me of our family history of PMR, when she was diagnosed a few years before me and our father also struggled with it late in life. We're both in our 60's. I was treated with prednisone for 2 years but I also have GCA. So I got off prednisone in 2021 after starting Actemra treatments 6 months before tapering off prednisone. I'm in my 4th year of Actemra infusions, tapering down to an infusion every 3 months. I still have shoulder, neck and hip pain, soreness, but I take Tylenol to get through the days. I feel best when I walk or ride bike, just keep moving. The couch is not your friend. Thank you for your help and for listening. Good luck to us all.