← Return to Pheochromocytoma: Anyone being treated for an adrenal mass?

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Thank you Jeane.
I’m sorry to hear about your health difficulties and am so glad you are receiving the care you need at Mayo. I originally started at the Mayo Clinic very hopeful of finally finding some help only to be disappointed. She is so traumatized that more testing is just not possible right now, unfortunately. She doesn’t have a regular doctor who cares or believes her story other than her neuro surgeon who can’t help in this area. So far I haven’t been successful in getting anyone in the Mayo Clinic to be willing to help out in any way. I’m hoping to find some resources here.

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Replies to "Thank you Jeane. I’m sorry to hear about your health difficulties and am so glad you..."

I was just diagnosed with a mass on my adrenal gland. They said it was quite large. But most of my understanding has come from my own research.
They immediately scheduled me an MRI for tomorrow.

But I went in ER in hypertension crisis and they sent me home and didn’t do anything to get my blood pressure down.
I’ve been suffering 3 years and been misdiagnosed a couple times

I’ll pray for your wife. These symptoms are sometimes unbearable