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@marciak9

Hello
I was diagnosed October 2022. I went to the er with jaundice and got my MyChart results at 2am. Pancreatic cancer. That was very disturbing. I thought it was my liver. Eventually they did an EUS and MRCP. They placed a stent and sent me home. The day I was supposed to start chemo I woke up with a temp of 102. I was admitted to the hospital and after a week they removed my gallbladder.
Just had my 6th chemo and feel awful. I’m supposed to go to Mayo on Tuesday to see if I’m ready for the Whipple. I was feeling optimistic but now feel sad. I’m worried about the recovery from surgery. What is that like? Do I need a nurse to come in or go to a rehabilitation center? My husband is afraid he won’t know what to do to help me.

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Replies to "Hello I was diagnosed October 2022. I went to the er with jaundice and got my..."

Hello Marcia K, I am from Denver area. I had my surgery in late May 2021. I had a great surgeon, Dr. Del Chiaro, at UC Health Anschutz in Denver. They would not release me from the hospital until I was very stable and my husband was able to assist me. I don't know about your situation, but I do believe the doctors do not let people go home until they are medically stable and ready.

Thank you for sharing your story. My own experience is that difficult emotions go with the diagnosis of pancreatic cancer. I just had my 6th chemo today. The first with FOLFIRINOX sent me to the hospital. I told my doctor if there wasn't a way to change the treatment I would rather die than keep getting it. I am now getting FOLFOX and it is quite manageable. I saw an oncologist at Memorial Sloan Kettering to review the chemo (I have BRCA 1 gene) as well as the surgeon and the verdict was that the chemo I was taking was working just fine. I was greatly relieved as the FOLFOX (FOLFIRINOX minus irenotecan) has been going nicely for me so I don't need to adjust to something else. If you are a candidate for surgery at this time you can discuss the issues with discharge planning and rehab with the surgeon, could be someone in the office addresses the issues of post hospital care. My mother, age 95, had a pacemaker and we did not advocate hard enough for her to go to rehab instead of home, she spent a month private pay in an assisted living facility to get the care she needed. Stick to your guns about rehab, if the care which is needed seems beyond the ability of a family member to provide, stand up for yourself and say so. Based on the experiences of my family members and the care of my mom, it seemed like the staff were only too quick to try and shift responsibility to family.