Thank you for sharing what you are going through . You felt validated when your physician said it’s not in your head … I’m sure that is what I’m searching for … to feel validated. One minute i feel as though I’m turning the corner then the next … feel bad again . I’m lucky to not bed bound now … what’s frustrating what I’m reading they say work around your symptoms pace yourself so you don’t crash … my days are so unpredictable how can i do that ?
I want to scream at times and say please believe me it’s not in my head .
I keep a daily journal of my symptoms… that most troubling is “shakiness” internal tremors now MD wants me to see a Neurologist…
Good luck everyone- hang in, stay strong
I’m so thankful for all the support