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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@decrepit

I'm NOT a doctor. So, I can do nothing but relate my experience. But, I've seen recent ads for Sanexas treatment on local television. It is advertised as being for Peripheral Neuropathy. The conduction points are on the foot.
I had them put the electrodes on my lower back, instead. This was approved by the Nurse Practitioner at the Sanexas location. Dry Needling was also done on the same days.
It sounds like your problem is different from mine.
The Neurologist told me that it sounded like I might have a combination of peripheral neuropathy and that nerve problems from L3-4 "could be" part of the problem. The closest thing to a diagnosis is idiopathic peripheral neuropathy. In other words, they don't know what is wrong, just like your case and the cases of many of us.
It is important to note that Sanexas and needling did not help my foot drop or limb weakness. It did help the needle-like itching in my feet.
Following an approach where the patient should participate (within reason) in their treatment, I think I would ask more questions. It seems like you are on the right path. You didn't say whether your doctor was a Neurologist. Were your tests blood work that can rule out a lot of neuropathy causes? I paid for several panels, but they were inconclusive. Many docs will not even test, simply because there is usually no cure. They treat the signs and symptoms.
Have you tried massaging trouble areas to see if that helps? That may tell you a lot.
I feel your anxiety, and I'm sorry I don't have a better answer for you.
Best Wishes and Health!

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Replies to "I'm NOT a doctor. So, I can do nothing but relate my experience. But, I've seen..."

Thank you for your response. I have a neurosurgeon who performed my C5-6 fusion and discetemy. He feels that all the symptoms are not related to the spine injuries or surgery. I also have a neurologist and rheumatologist who are treating me for the symptoms. The neurologist feels it is autoimmune related and the rheumatologist feels that it is neurologically related. I'm like a ping pong ball right now. I have had three series of extensive blood work done and also two EMGs and four MRIs. The next step is the skin biopsy. Can you tell me more about the B12 treatments? I take B12 supplements and eat a diet rich in anti inflammatory foods to help my symptoms as much as possible. I also go to physical therapy and do tai chi at home. I will try any alternative treatments that I can find available. I will be going to the cleveland clinic next month. The mayo clinic is much farther away, but I will be inquiring about going there as well, once I am able. I am 45 years old and have two young children so this is quite a challenge for my family.
Thank you for any advice you have to offer.

Kat