What is the average age of the gentlemen on here?

Posted by john57 @john57, Mar 26, 2020

good evening men. i have a group question here. i,m 57 years old and i feel that is kind of young to have prostate cancer. so my question for the men is what is the age of some of you?

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@stebro

I'm in the process of getting scheduled for SBRT at Rochester. I'll be lurking on the prostate-cancer group.

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Wondering how your treatment went. Husband scheduled for SBRT at Mayo for recurrent prostate cancer.

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It went well, thanks. I spent the Christmas holidays getting the treatments. The most aggravating side effect was the constant urgency to urinate and the difficulty doing so after the third treatment. Urination was painful. An over the counter drug, AZO, was very helpful. Available at most pharmacies. But I did not know that until I was nearly done. My PSA dropped from 13.4 to 6.005 from the beam alone in three weeks. I declined ADT. I will have my PSA checked again in five months. My last treatment was 1/29/2023. I am easily fatigued and am told that may last a few months. The other side effects are either gone or under control.

My oncologist is pleased with the results. The beam team was very professional. I count this as success. I hope your husband's experience is also good.

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I thought the same thing about myself, I was not quit 53 when diagnosed, then RP in couple months at 53. 62 now, had BCR after psa rose from less than .1, to .2 and .3. Treated with radiation and Orgyvyx...

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I am 75. I was diagnosed in 2012 with prostate cancer. My PSA just rose from .26 to .84. My Oncologist has ordered an MRI for this coming May.
Phil

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@bfg1

Was the surgery difficult to heal from?
The worst part was when I got home after cystoscopy and the lidocaine wore off. When I had to urinate the burning was extremely painful.
I’m considering going out to Rochester Mayo Clinic in the spring if things don’t improve. There are no urologists near me that do any kind of reconstructive work with strictures and the like. my psa is still undetectable at this point also.
Thankyou so much for sharing your experience.

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@bfg1, Sorry for the late reply; things got a bit crazy in my life as if not crazy enough. For the meatal stenosis, the urologist basically had to put me under and stretched out the stenosis which allowed me to urinate really well. The urologist stated that it's possible the stenosis may return and if so, she'll have to do surgery which she stated is a type of surgery done often to correct the stenosis and is quite successful. So far, with the meatal dilation I had in Nov. of 2022, I've been urinating fine; I have noticed a slight change recently with maybe a slightly slower stream which has not effected my ability to urinate normally. However, I'm keeping an eye on it. I certainly hope things have improved for you; if not, as you said, I hope you'll seek some additional opinions on how you can get some help and relief. Good luck and stay positive. 🙂

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@cirrussantafe

Thank you for the reply; I too experience the meatal pain after about 5 months. Thankfully I'm able to urinate much better though after the surgery where the stenosis was stretched.

Yes, when the urologist tried to do the initial cystoscopy in the office, it wasn't pleasant; thankfully I was put under for he 2nd one in which the urologist also did the MRI to see if there was a stricture.

I'm sending good vibes to you and your family; I wish you continued success and improvement throughout.

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Thanks for your help and encouragement.
I really appreciate the fellowship and I’m wishing you well also some prayers.

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My husband was diagnosed with prostate cancer at 55. Biopsy shows we caught it early. This is just the beginning of trying to figure out what to do next. Is active surveillance the norm until the PSA scores are really high? I feel as if he should be doing something to combat it, just not sure what comes first. Hormone therapy? I'm so lost with all this.

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@karlarocha

My husband was diagnosed with prostate cancer at 55. Biopsy shows we caught it early. This is just the beginning of trying to figure out what to do next. Is active surveillance the norm until the PSA scores are really high? I feel as if he should be doing something to combat it, just not sure what comes first. Hormone therapy? I'm so lost with all this.

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Someone correct me if I'm wrong but the decision for active surveillance is based on Gleason score, not PSA level. Surveillance is most commonly recommended with a Gleason score of six (3+3) You said your husband had a biopsy and should have been provided his score. My biopsy showed Gleason 3+4. If you search Gleason score you can learn the risk factors and recommended treatments for the different numbers (3,4 or 5). The score will have two numbers, with the first showing the stage of the most abundant cancer cells and second number showing the stage of the lesser abundant cells. My score showed I had more 3 than 4 development. Your husband's Urologist should have explained all this.

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@karlarocha

My husband was diagnosed with prostate cancer at 55. Biopsy shows we caught it early. This is just the beginning of trying to figure out what to do next. Is active surveillance the norm until the PSA scores are really high? I feel as if he should be doing something to combat it, just not sure what comes first. Hormone therapy? I'm so lost with all this.

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Prostate Cancer Foundation (PCF.org) has a good free dowloadable or hard copy of a prostate cancer tutorial.
Also, Patrick Walsh's book is an easy to read resource recommended by many on this site, including me.

And everything rockinat59 said is valuable.

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