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@cookiegirl1944

I am experiencing what you are going through. I was diagnosed with PMR nine months ago and was started out on 30 mg of Prednisone. At that dose I felt no pain , no depression and had so much energy I could work 15 hours a day non stop. Once I got down to 20 mg a day then the pain, depression, fatigue came back. The doctor did not know what to think and declined to give me methotrexate to help me. He just kept reducing the dose of prednisone until I got to seven mg a day. Pain and stiffness in my lower back, hips and bath legs. Can hardly move. Last week I was seen my a rheumatologist at the Mayo Clinic in Rochester who said he did not believe I had PMR. He wants me now over the course of 12 weeks to get off the prednisone. He thinks I may have fibromyalgia and wanted me to take Cymbalta which I declined. I have no generalized pain, only in my hips and legs. He will give me in a few days a cortisone injection in one hip plus I will have a nerve conduction test. Now I am confused as to what is causing the leg pain and stiffness so any ideas from others would be greatly appreciated.

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Replies to "I am experiencing what you are going through. I was diagnosed with PMR nine months ago..."

I too have the majority of pain in my thighs and legs in general, not in upper body. Very stiff. Have been reducing (very slowly) my pred and am down to 4 mg of prenissalone. Don't want to go up on pred as I have glaucoma and experiencing vision loss as it is. I will be seeing rheumy in a couple of weeks and don't think he will much to add. Already had EMG which was negative and can't imagine what else it could be. Have trouble walking so need some kind of fix. About shots of cortisone- remember, you might get a systemic effect which will make you feel better for awhile. Cymbalta made me experience anhedonia, didn't care about anything, no good. Did help slightly with pain, 'though. Might be different for you.