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Replies to "Hi @lagrange5, The tests have to stop sometime, but unless you’ve had a standard set recommended..."
Neuropathy | Last Active: Feb 27 10:24am | Replies (39)
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Hi @lagrange5,
The tests have to stop sometime, but unless you’ve had a standard set recommended by the Mayo Clinic and the American association of family physicians, you should try to get them. Assuming good insurance, I would switch MDs if necessary. You can find the list in the attached paper (if it goes through). A slightly different list is recommended for SFN. It is described in a similar paper published by the Cleveland Clinic.
FWIW, a paper out of Columbia University Hospital reported that 1/3 of patients referred to them as “Idiopathic” actually had assignable causes.
Best of luck,
https://www.mayoclinicproceedings.org/article/S0025-6196(15)00378-X/pdf
Replies to "Hi @lagrange5, The tests have to stop sometime, but unless you’ve had a standard set recommended..."
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Thank you, @larry4343. I read the article, and it's great - thoroughly informative. It's a long read but worth it. When I was done, I felt like had a medical consultation. I would recommend the article to anyone. I will be seeing my PCP to discuss some of the options.
I actually underwent the standard testing at Mayo, where I was diagnosed. The EMG/NCV and tilt table confirmed it for the neurologist.
In my nonexpert layperson's opinion, I think my cause was toxicity from prescribed drugs. I took atorvastatin (cholesterol) and amlodipine (hypertension) without problems for years, when colchicine and alopurinol got included...and that's when I got hypotensive, extremely lightheaded, and burning feet that became PN. I think colchicine created a toxic interaction with atorvastatin and amlodipine, all of which I have stopped taking and were replaced. My PCP took me of all meds until I stabilized. He is now managing my gout, and there are no problems with alopurinol, nor has he ever seen any in his experience.
Please forgive the long reply...I didn't know how to shorten it. Thanks for reaching out.