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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hi Michael @mikeamazur, Welcome to Connect. I used to love a glass of wine or a few beers once in awhile but after I was diagnosed with neuropathy and found out that alcohol can cause neuropathy I just stopped drinking it all together. I don't think an occasional drink has much effect on most people with neuropathy. On the other hand, if you have neuropathy and you notice that it seems to be worse after having a drink that would ring an alarm bell for me and I would stop drinking. There are a few sites to learn more about neuropathy and what treatments may help provide relief for the symptoms. These are two of the better ones.

--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.

There are a few discussions that you might find helpful on neuropathy and alcohol:
--- Small fiber peripheral neuropathy and alcohol: https://connect.mayoclinic.org/discussion/small-fiber-peripheral-neuropathy-and-alcohol/
--- moderate use of alcohol: https://connect.mayoclinic.org/discussion/moderate-use-of-alcohol/
--- Alcohol helps with my pain: Does it make neuropathy worse?: https://connect.mayoclinic.org/discussion/alcohol-2/.

Do you mind sharing a little more about your diagnosis and how long you have had neuropathy?

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Replies to "Hi Michael @mikeamazur, Welcome to Connect. I used to love a glass of wine or a..."

About 6 years ago, (73 years old), I began to notice that I had pain and tingling. It was everywhere in my body. Scalp, ear lobes, legs, feet, penis, etc.,. It lasted 10 to 30 seconds per episode and the episodes were at least every half hour. I went to a neurologist at U of Michigan . He told me I had small fiber neuropathy. No cure for it and if it gets worse I could take Gabapentin. I actually took gabapentin for a short while but the side effects were worse than the pain and tingling so I don’t take it. I am borderline diabetic and the neurologist said that could be the cause. He really didn’t know. I decided to stop intake of sugar. No soda pop, cakes, cookies, ice cream, etc.,. Within two years the small fiber neuropathy was 90% gone. I was so happy. I still have a small amount that occasionally manifests itself in my eyebrows. However I live with it. I have peripheral neuropathy in my feet. It is very different than the small fiber neuropathy. It started about the same time and is getting worse. Both feet are about 50% numb and I have two toes one on each foot that are painful. They hurt a lot especially in the evening when I sit down. They don’t hurt when I walk or am active. They are getting more painful at night. I stopped drinking alcohol and it appears that it helps but it is hard to quantify.
Michael