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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome
Hi. Quick back story. In Nov 2018 I had sharp pain in the top middle of my abdomen right below my sternum. Pain level 10 of 10. They thought it was my gallbladder, had it removed. Still had pain. multiple ER visits, hospitalized 2-3 times for a week each, 20 plus doctor appointments, over 100K spent in medical costs billed to my insurance.
As a last resort, went to Mayo and was diagnosed in under 30 minutes.
In January 2019 had my first trigger point injection, just had my 2nd injection March 2019. Still in a lot of pain. Taking gabapentin as well. **Has anyone else been diagnosed with this AND what are the symptoms & treatments you are receiving? Are you finding any relief?**
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Thank you.
I'm not sure if this can help anyone but my son was seen by Dr. Olivier Rolin (pediatric physical medicine and rehab) in Richmond, VA and received trigger point injections from him.
My pain is constant and unrelenting; nearly five years.
No, it’s Anterior.
Hi, I have also been dealing with Abdominal Wall Nerve Entrapment Syndrome for over 4 years . And it's true when you say your pain level is a 10. I've also been to multiple doctors and had so tests, scans, mri's and hospital stays with all showing no abnormalities. A few doctors thought it was all in my head!
About 2 weeks ago I went up to USF pain management in Gainesville, Fl.. The pain management was an anetheseoligst. He diagnosed me immediately! It was music to my ears!
He looked at the area where I feel the most pain and traced a nerve around my ribcage to my back . Each spot he touch with pressure hurt.
Game plan is he's going to block all the nerves on right hand side around to back. He'll only do one side at a time in case he punctures a lung, altht
Although this is done in a surgical center under under an ultrasound for guidance. If this works, he will then just go ahead and sever the nerves (left and right side) with radio frequency.
Please pray for me during this procedure and that it all goes as planned. I have been in severe pain for so long. He said that why Opiates don't work for the pain is that it's nerve pain.
My procedure is scheduled for February 28th.
Thank you,
Victoria
I hope this helps others with this sort of pain.
God Bless 🙌
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1 ReactionEvery case can be somewhat different. Can hurt constantly or with mine it was movements the caused unbearable sharp pain below lower right rib cage.
I’m praying you get relief from this, it’s so exhausting.
Thank you.
I'll post my progress.
With my ACNES is was constant but got severe and debilitating once I would get up and move around. I feel like I have a band squeezing around my upper abdominal area to my back and my chest area feels like I'm having a heart attack.
I've had full heart check ups in the hospital showing no abnormalities.