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Scoliosis - Introduce yourself and meet others
Let's talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles and Spine Health groups, I've noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.
Get comfortable in your favorite spot, grab a beverage of your choice, and let's chat. Why not start by introducing yourself?
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Oh, I see you already gave me this info! Yes, your situation is quite similar to mine. Who was your surgeon?
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1 ReactionIt is interesting that you and a few others are having their backs fused to S1. I wish that my back would have been! My lumbar spine L2- S1 is the only area where I have problems. The problems are, in part, due to aging (degenerative disc disease), and other factors--shifiting of vertebrae due to the scoliosis, buldging discs, and spinal stenosis. The pain I currently have is increasing, and surgery for that area may be in the future. I also have osteoporosis so from a surgery standpoint you don"t want to delay your surgery. You just need to make certain that you go to a top surgeon on the field.
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7 ReactionsI also have osteoporosis. It’s still possible!
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4 ReactionsGetting surgeries done end of march for my scoliosis.
Curves 107 & 75.
I imagine quite larger than most. Just wanted to say hi and if anyone has gone through the vertebral column resection (VCR) surgery and/or been fused from ~T3-L4.
How long after were you able to do daily things on your own? Im 29, and getting ~T3-L4 fused later this March. Curves are 105 and 75.
My surgery was 2 days over a 3 day period. I was in the hospital for a total of one week. I was able to take care of most of my personal needs after about 3 weeks and returned to work after about 6 weeks. I was able to walk 2 miles one month after my surgery and 3 miles 6 weeks post surgery. 5 months post surgery I was over 6 miles.
Most things I can do by myself, however some are more difficult than before. This is largely due to my restrictions of no bending or twisting until I hit the one year mark. My husband and/or mom pretty much stayed with me or nearby for the first 3-4 weeks.
I'm confident I'll return to pre surgery activities, perhaps with some modifications. I hope this helps, and good luck. Follow doctor orders!
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4 ReactionsI went through fusion on L4-L5 is been almost 6 months the pain and the tingling came back not easy to deal with this I’m taking anti inflammatory and muscle relaxer and pregablin pain isn’t going away😟
Hello I'm Tree61. I have had back problems for years asking with falling 25ft to the ground on my back, which resulted in a diagnosis of (Flat Back Scoliosis)
I actually thought my doctor was playing a joke on me when he told me I had Flat Back. I just stared at him and giggled. Then asked him what his real diagnosis was. Must be pretty bad if he starts off with a Flat Back joke right?
Nah he was serious. Then he showed my CT scan and sure enough my lower back is completely compressed together and flat. I do not bend forward or backward in my lower back. He also said I had scoliosis. To that I looked at him and said "no I don't I have spinal degenerate disease" He said No you started with Scoliosis. I got offended lol.
That's why I am here. This is all new to me.
Thank you!
Thanks so much for the words of encouragement!