My best to you. Your history sounds very similar to mine except that I'm 82. I'm taking Abiraterone and Elligard (quarterly injections) and Prednisone to mitigate some of the side effects. I feel great and my oncologist says that it's "asleep" (another word for dormant, I suppose). Need to live a day at a time and enjoy my good quality of life for as long as possible. I hear age being discussed in this thread and 54 is certainly young. My son-in-law has a friend who battled PC in his 30's, but was successfully treated.

I am 63. I was diagnosed with stage 4 in 2018. I had surgery, chemo, radiation, and Lupron. I made 4 yrs. cancer free. However, the beast just returned. I am reacting to your post because I am surprised that you have not been scheduled for surgery or chemo. Am i reading that correctly? You are just taking meds?

I'm am 64 and was diagnosed in January. PSA was over 200. I was put on Casodex for 2 months and started Abiretarone, Prednisone and given 6 month Lupron shot. My PSA is now under 4 and I feel good. Will be starting radiation next week - 20 sessions. Stay positive. It's a long haul. Do your own research and you can live a long productive life.

I did Xgeva and lupron for 5 months andNeulasta and now I’m on Xtandi. Hot flashes are unbearable sometimes. I wish you luck, I’m on methadone for pain along with oxy 10 mg