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I can't get properly diagnosed and I'm spiraling

Neuropathy | Last Active: Feb 19, 2023 | Replies (35)

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@njed

janice - In many ways, in my opinion, this all comes down to liability issues. A surgeon must have a concrete feeling that an operation will improve the standard of the health and life for the patient. And unless he/she feels that can be accomplished with minimum risk, little chances of a procedure being performed. In my case, I walk into the office of a neurosurgeon, no assistance, no walker and yes in pain. If a procedure is performed and after that, I'm worse off, then what. Two top neurosurgeons in my area told me the same thing.

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Replies to "janice - In many ways, in my opinion, this all comes down to liability issues. A..."

I think this is a common situation. For me, a neuromuscular specialist said that two EMGs show that I have a radiculopathy, but a spine surgeon looked at my MRI and said no. My neurologist is falling back on the idiopathic neuropathy (non) diagnosis. I’m not sure where to take it from here.

I’m going to meet with another neurologist and see what he has to say, but I’m becoming resigned to the idea that I will never get a real diagnosis: idiopathic doesn’t count.