Connect
← Return to What Happened to Medicine?
Discussion
Comment receiving replies
I am so sorry to hear how the health system is failing you. You should not have had to wait 3 years for a hepatology appointment. I can only imagine how you feel. It sounds like you manage and cope in a very healthy ways. I was inspired. Baking bread for a neighbor or even a few muffins is something I could do.
I am not sure how large your community is...but if you are in a larger metropolitan area, there are many options. Messages via MyChart should be more streamlined for your providers and not be ignored. I would love to talk if you have need support. I am in a similar situation with my health and ongoing appointments with multiple specialists. I will be 54 in April. Before my diagnosis, I was so busy with my career, colleagues, clients...it is very difficult now and lonely. I have been struggling with that. I think we should look at your options for a new PCP.
Replies to "I am so sorry to hear how the health system is failing you. You should not..."
Connect
Thank you. I am gearing up for my appointment tomorrow with my PCP. I have decided not to be confrontive with him at all because I know it will not make any difference. The last time I saw him, I told him that I wanted to feel as if I mattered. Mattered to him, to Sutter etc. That's when he asked if I wanted a new doctor. Well, I will find one soon. Tomorrow I will just sit there like he does and let him talk for a change. I am curious what the hematologist had to say about the blood disorder.
On another note, I can feel that I am approaching some kind of new depressive state, probably because my dog died one year ago on March 2. But, I just heard from the shelter that they need me to foster a dog, so that would be really great for me, as I miss having the "company."
There are some days, more recently, when I feel like giving up, or not continuing with my art or weight lifting, but I force myself because I will be left without any fortitude.
This forum gives me so much hope, I cannot even explain it clearly enough, Before I discovered this patient portal I felt so alone, now I do not.