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Conversion disorder with pseudoseizures (PNES)

Epilepsy & Seizures | Last Active: Mar 5, 2019 | Replies (13)

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@ditim

<p>I have conversion disorder with psedoseizures. I have the jerking from the seizures on a daily basis. I passed out once with my first one in '09. The jerking I've had since Sept. '10. Now I have speech slur almost daily and I started yelling out when my body tries to rest. I've had a lot of trauma and stress in my life and my Neurologist [after much testing] said as a result I've been diagnosed with conversion disorder and the pseudoseizures are a symptom. I'm 59 and no longer drive. I've applied for disability, denied, and have appealed. I stay positive and thank the Lord for what I am able to do. @outback101</p>

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Replies to "I have conversion disorder with psedoseizures. I have the jerking from the seizures on a daily..."

I have been diagnosed with Conversion Disorder as well; and am TIRED of having EPILEPSY from a STROKE on 05/04/01!!!!! I loathe PROVIDERS now, and NO LONGER CARE or wish to even have MEDICAL CARE, PERIOD! NO-ONE really UNDERSTANDS, unless THEY have been THROUGH it THEMSELVES!!!!! I also have PSEUDOSEIZURES, so what's the POINT of being a PATIENT, especially when MY FAMILY DOESN'T BELIEVE ME? I am sympathetic to your story, because I have also LIVED IT for the past 40 YEARS! I am 58 years young, will never be able to drive! I was writing a book entitled "Misunderstood and Understand and Resilient!" I fully UNDERSTAND your situation ! I also have experienced both slurred speech and jerking limbs!