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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Jan 27 8:38am | Replies (1879)Comment receiving replies
I was diagnosed with PMR in October 2020 and was put on 20 mg of Prednisone. I am diabetic so my blood sugars rose at which time my endocrinologist put me on insulin shots. Everything improved for 6 months. Then my rheumatologist felt it was time to taper the prednisone meds. At the same time I received my first Pfyzer vaccination in March 2021. I began having muscular aches in my calves. In June 2021 I received my second vaccination. The muscular aches increased. I was concerned that the tapering of the prednisone was too soon so my rheumatologist increased it to 25 mg. There was no change. So I started the taper once again. In Dec 2021 I received my first booster A week later my muscular and achy joints in
My legs increased and walking was laborious. I have continued deceasing prednisone meds and am now on 2 mg a day. My CRP readings are normal yet my mobility situation has not improved. When I sit or lie down I fel normal but when I stand or start to walk mobility is an issue. Is anyone else experiencing what I am going through?
Replies to "I was diagnosed with PMR in October 2020 and was put on 20 mg of Prednisone...."
I'm starting to really think the COVID shots are the cause of this mess. YIKES!!😳
I am experiencing what you are going through. I was diagnosed with PMR nine months ago and was started out on 30 mg of Prednisone. At that dose I felt no pain , no depression and had so much energy I could work 15 hours a day non stop. Once I got down to 20 mg a day then the pain, depression, fatigue came back. The doctor did not know what to think and declined to give me methotrexate to help me. He just kept reducing the dose of prednisone until I got to seven mg a day. Pain and stiffness in my lower back, hips and bath legs. Can hardly move. Last week I was seen my a rheumatologist at the Mayo Clinic in Rochester who said he did not believe I had PMR. He wants me now over the course of 12 weeks to get off the prednisone. He thinks I may have fibromyalgia and wanted me to take Cymbalta which I declined. I have no generalized pain, only in my hips and legs. He will give me in a few days a cortisone injection in one hip plus I will have a nerve conduction test. Now I am confused as to what is causing the leg pain and stiffness so any ideas from others would be greatly appreciated.
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Yes. I went back to 3mg of prednisone a day and some of the pain and stiffness did disappear. Although the pain is nothing as bad as it was, I still have no wish to feel even a little stiffness and sore muscles. But what can you do? It is what it is. One thing my Rheumatologist did stress, don't try and tough the pain out, that will only make it worse. My salvation is reading and pc computer games. It takes away the pan for a little while. I have improved enough over the past year that I really feel like all this will come to an end, but at 78 I feel like the clock is ticking.