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Scared - Suspected NET on tail of the pancreas

Neuroendocrine Tumors (NETs) | Last Active: Mar 13, 2023 | Replies (47)
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@pete1962

Hi rockchick. Congrats on your successful surgery. I can understand that you are scanned out.

I had a wipple procedure in March 2019 which went very successful; they caught everything and I was back to work in 3 months, living the rest of my life on Creon and Omeprazol.

Unfortunately at my last scan in Dec 22 they found liver lesions, now confirmed as NET tumor. Did not have a scan for 2 years due to work / covid but I wish I had.

Found this forum on my research for my first oncologist appointment on Feb 27. Thanks a lot for all the info which is very helpful.

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Replies to "Hi rockchick. Congrats on your successful surgery. I can understand that you are scanned out. I..."
rockchick | @rockchick | Feb 18, 2023

And please get regular scans after this. I am so worried about any kind of reoccurrence that I plan to have one every three months. There is no way I could not worry and go 2 years!

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Teresa, Volunteer Mentor | @hopeful33250 | Feb 20, 2023

Hello @pete1962 and welcome to the NETs discussion on Mayo Clinic Connect. I am glad that you found this forum. It is good to connect with others who have had this type of cancer. I'm sure you will find support and encouragement.

I have had three surgeries for NETs in the upper digestive tract over the past 20 years and my last surgery was about 7 years ago. I now have follow-up endoscopies as well as MRIs of the liver and pancreas.

I see that liver lesions were found on a scan in December. You mentioned that they were confirmed as NETs. I'm wondering how this was determined. Did you have a liver biopsy? Also, how are you feeling now?

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