Hi, @iamrare2 - and others here. UK sufferer, covered in so many painful lumps! For many years I ignored them as they grew. Only when they began to grow into larger lumps, and a number of them became painful, did I reach out to family, who acknowledged a family history, while still not knowing what they were experiencing. Doctor after doctor fobbed me off, or at most admitted they had no idea what I was suffering from. In the past couple of years I've finally managed to get a DD diagnosis, but no treatment yet. I have to wait on the GP to contact a specialist to consider possible surgery. I have previously been told that only 1 or 2 lumps at a time can be removed, but that would take a while as I have around a hundred visible lumps. They're also now making their way in between certain muscles, making any exertion or exercise painful, so all I can do is hope that some doctor somewhere decides I'm worth operating on. I can't afford private treatment in the UK, but I've heard a lot of good things about India as a destination for surgery which doesn't cost a lumpy arm or a leg! Anybody have any info regarding India-based surgeons who know their way around DD?