Hello @emmepoppins ,
So sorry to hear of your husband's diagnosis. My son has also been diagnosed with a grade 1, well-defined GI NET. He has had numerous CT scans lately due to other serious GI problems, and "cysts" were seen on his kidneys and spleen. We are waiting for the PET dotate test to determine is the cysts are actually NETS. But similar to your husband, my son's mesentery was described as highly usual, during a laparoscopy. We are worried that the NETs have spread to his mesentery. And lastly, I have constantly felt EXTREMELY cold since having Covid 2 years ago. But just in the past few months, it seems to have improved. It may be a long side effect of the illness, but will eventually recover. Tell your husband to be strong; there is much hope and successful treatment for NETs! He is fortunate to have your love and support.