← Return to Osteoporosis and Forteo (teriparatide): What to hear experiences

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@ans

I’m new here and am not that familiar with how to navigate this site. Now that I’m in the osteoporosis group section I’ll say what I’m also really looking for is feedback on people’s experience with FORTEO , as that was recommended. (Thank you though for the info on Tymlos.) I want to hear the good , the bad, what side effects you encountered or not. And everything in between!!!! What were you transitioned to after you ended Forteo? Has anyone been on Forteo for more than 2 years as I hear that is a possibility now. Many Thanks !!!!

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Replies to "I’m new here and am not that familiar with how to navigate this site. Now that..."

I took Forteo about 14 years ago for about 2 years. I didn't have any side effects at all. You do have to inject yourself everyday but the needle is very thin and I didn't really feel it. As to traveling; I had no problems. I had an insulate lunch bag with a blue ice freezer thing. I always kept it with me and when I went through TSA I had my prescription with me and let them know I had a cold pack. Never had any problems. When in the hotel I kept it in the insulated bag. My bone density went from a -4.8 to a -4.0; which is pretty good. I followed up with actonel but had to switch to reclast because actonel irritated my stomach.

I am simply copying my response here (some what of a novel - sorry) to a similar question re Forteo
I can only share my recent experience. Unfortunately, (praying this is a lesson to all!) I was not given a bone test prior to a rather complicated back surgery. I never healed and only got worse afterwards. The test should clearly have been done based on my risk factors. The end result was so bad that I now have "cages" that have migrated enough to make contact with arotic artery as well as another major vein. No new surgeon wants to risk a revision surgery, demanding that I take Forteo to build up bone enough to even think of a revsion . Feels like being held hostage. So I am now at week six with daily injections. I was so cocky and happy the first two weeka! No side effects. So happy because having vertebrae bone on bone and permanant nerve damage is enough pain! THEN week 3 comes! Every joint is now hurting and I am extremely unstable. Ankles and knees go out without notice and I have had several bad falls. There has been no change to meds except for Forteo. In addition, ALL of my lipid (Cholesterol etc) tests have completely turned upside down! In a matter of those three weeks! The pain keeps me up all night. Pain in places I have never had it, even with severe back issues. How the heck can the top of the foot feel like I was stepped on by an elephant? Shin pain worse than shin splints.
I have had no support medically wise currently, as I have been waiting five months for an ecndocrinologist appointment and with the needed revision surgery on hold I had to simply take it on my own. (After a 4 month insurance approval process), That is a very long way of telling you that, if the life saving surgery I so desperately need was not behing held over my head, there is no way I would have started this Forteo! FYI T score -3.8 and 62 years old. Make sure you find an empathetic physician that can review these side effects honestly with you. I wish you the very best. Again, don't want to freak you out, every body is different, you may well be able to tolerate.