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Replies to "My neurologist told me it is idiopathic and that about 12% of men over age 60..."
Hi @lagrange5,
The tests have to stop sometime, but unless you’ve had a standard set recommended by the Mayo Clinic and the American association of family physicians, you should try to get them. Assuming good insurance, I would switch MDs if necessary. You can find the list in the attached paper (if it goes through). A slightly different list is recommended for SFN. It is described in a similar paper published by the Cleveland Clinic.
FWIW, a paper out of Columbia University Hospital reported that 1/3 of patients referred to them as “Idiopathic” actually had assignable causes.
Best of luck,
https://www.mayoclinicproceedings.org/article/S0025-6196(15)00378-X/pdf
Oh it's progressive and is becoming a major disability for me in 5 years. The doctors have no solutions!