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SFN in feet

Neuropathy | Last Active: Feb 27 10:24am | Replies (39)

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@lagrange5

My neurologist told me it is idiopathic and that about 12% of men over age 60 get it. He said that for unknown reasons soaking feet in epsom salts relieves symptoms, I tried it, and didn't work for me. Another doctor told me that there is a long list of possible causes, which is why that becomes an easy answer for med school students. After further discussions, I now believe that saying "idiopathic" is an easy way out of ordering extensive testing to rule out numerous possible causes. The good news is that small fiber neuropathy means some discomfort but not major disability, Although it is said to be progressive, I handle it like my other medical "gifts" ... with proper diet, the right exercise, good sleep, and minimizing stress. A positive mental attitude including a good dose of humor can be great medicine. I believe it is best to define ourselves by who we are as opposed to the ailments we have. Easier said than done, but it has worked for me.

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Replies to "My neurologist told me it is idiopathic and that about 12% of men over age 60..."

Oh it's progressive and is becoming a major disability for me in 5 years. The doctors have no solutions!

Hi @lagrange5,

The tests have to stop sometime, but unless you’ve had a standard set recommended by the Mayo Clinic and the American association of family physicians, you should try to get them. Assuming good insurance, I would switch MDs if necessary. You can find the list in the attached paper (if it goes through). A slightly different list is recommended for SFN. It is described in a similar paper published by the Cleveland Clinic.

FWIW, a paper out of Columbia University Hospital reported that 1/3 of patients referred to them as “Idiopathic” actually had assignable causes.

Best of luck,
https://www.mayoclinicproceedings.org/article/S0025-6196(15)00378-X/pdf