@jw7 - wow what an incredible journey. My mass was discovered on a post op ct scan after my heart surgery at Mayo. I was already a pt because of my heart and was referred to the adrenal endocrinologist here at Jacksonville. I have been scanned every 6 months, and had numerous urine and blood tests. My labs are normal but my scans are not. They are going to present my case at the next adrenal board meeting here to discuss surgery or following. My mass is very lipid poor hard to determine adenoma or pheochromocytoma. I would suggest trying to have one of your wife’s physician reach out to mayo or try one of the mayo network providers- once seen by them they can get you a referral. That’s how I initially got in with my heart problems. As for testing- I am not sure about that- like I said they have me right now having ct scans every 6 months- I have had no growth- I also get blood work and do 24 hr urine collections- so I would just guess they would require a new scan and blood work at least to see the current measurements of the tumor and hormone levels. But given your wife’s condition they may go by previous scans. Best wishes. I hope this helped.
Jeane