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I can't get properly diagnosed and I'm spiraling
Neuropathy | Last Active: Feb 19, 2023 | Replies (35)Comment receiving replies
Good question. The short answer is the surgery scares me to death. So I’ve done my own risk/benefits analysis.
My MRI shows severe lumbar stenosis at L3-4, L4-5, and L5-S1, plus spondylolisthesis, and degenerative scoliosis. My neurosurgeon said he would perform multi-level decompressive laminectomies and fusion. He said he could help me or hurt me, no promises. So, if it doesn’t go well I could end up worse off than I already am.
Currently, my lower back symptoms are the added walking/standing difficulties, and some occasional sciatic nerve pain, But, I can sit and sleep comfortably. I don’t know that I want to risk ending up with failed back syndrome from the surgery and risking that ability to continue to sit and sleep comfortably. So, for now I’m waiting and watching for any worsening of symptoms. My surgeon supports my decision to hold off on that surgery.
Replies to "Good question. The short answer is the surgery scares me to death. So I’ve done my..."
dave130 - I too share many of your same back issues and your surgeon, is being honest about the potential outcome. In past 2 - 4 years, my walking and standing difficulties have increased in particular with balance. I am lucky in that my neurosurgeon will not operate due to uncertain results. Second opinion confirmed the first. My thinking was could the back issues cause the PN? Like pinched nerve? Both started around same time. Multiple MRI's. Both neuro docs said no. Wonder how many people have PN who also have back issues.
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I am not sure I recommend the spinal fusions. I have had two: 15 & 20 years ago and a more recent neck fusion. Degenerative Disc Disease and Stenosis~~~That said , I have extreme Nephropathy and can't seem to get physicians to help. I am 83 and it is not a pleasant situation.
Kind regards, Janice