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DiscussionCelebrating 25 years of lung cancer
Lung Cancer | Last Active: Sep 10, 2023 | Replies (125)Comment receiving replies
Replies to "Hi, Colleen, First of all, I am pleased to hear that news of Merry isn't the..."
@lijda- What, great questions. I have had swollen lymph nodes for 25 years. I've also had more than one lesion at a time in both lungs. Maybe the following will help?
https://www.sciencedirect.com/science/article/pii/S1525157817303276
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2219804/#:~:text=The%20differential%20diagnoses%20of%20bilateral,term%20smoker%20is%20lung%20cancer.
Hi Lijda, to respond somewhat:
1) I have nothing beyond the lungs ( based on PET scan end Nov 2021) but I do have things in both lungs and both lungs active on PET scan. While I had a 3.1cm stage 1b mass removed from right lung (end Dec 2021), and right lung has the majority of other nodules, the second largest "thing" was in my left lung. They did not want to do anything before 6 months and then I had cardiac stent so it has been on hold. But left lung thing has been stable so far. I go to Mayo in April for next scan and there has been some activity with certain nodules. I would agree with your comment on bilateral lung nodules. I found a YouTube video, Dr Blackmon, Mayo about multifocal spread to brain.
2) I did the molecular testing but was not offered any treatment. I did not have to do anything after surgery, and only radiation or surgery has been topic of potential treatments in future.
I will be very tempted to beg for a sneak preview of the Mayo Multifocal study when I go in April. On Feb 11, 2022, Mayo added "Multifocal Lung Cancer Specialty Group to their Web page.