← Return to Living with Prostate Cancer: Meet others & introduce yourself

Discussion
Comment receiving replies
@hbp

That does sound like a reasonable plan, good luck with it.
I was kept on the Erleada for 12 months, which might be customary. I had prostate surgery in the 6th month. In the last month I had rashes on my chest and shoulders and if I had complained about that they probably would have stopped the Erleada in the 11th month and kicked me out of the Jansen clinical trial. I wanted to stay in the clinical trial as long as I could. Jansen paid for all of my cancer treatment for the last 18 months due to my being in the clinical trial. The numerous bone scans, pet scans, chest scans, monthly visits and blood test etc. And my treatment was treated as a top priority at UCLA and I was placed at the front of the line. My young surgeon at UCLA got me in the clinical trial, convinced me to take it and I was a good listener to him. The clinical trial should continue for another 18 months for a total of 36 mo Then my medicare supplement should cover most of the cost (but not all cost). 18 months ago when I was first diagnosed my prognosis was 4-5 years, after I finished the 13 months of meds and surgery the department head said that I should be good for 5-7 more years. At 75, I am hopeful for as many good, pain free years that I can get. I hope the same for you

Jump to this post


Replies to "That does sound like a reasonable plan, good luck with it. I was kept on the..."

I am also 75 and thank you for letting me know about what they shared with you.

My oncologist (who I met for the first time by referral ) did not mention any clinical studies going on at our facility (and seemed to indicate that I would not fit into the protocol for a clinical study) and I asked about studies and if the treatment would be any different if I was to go to Sloan Kettering , which of course is a major cancer center. He said that the treatment would be the same because our hospital is tied in with Sloan and cases are shared so protocols are the same. He said they have been using the Janssen drug since 2018 "when experience showed much greater results with the combination with Eligard" So for 4 years that has been their protocol of using both.
Thank you again for your input. Let's keep talking....I see him on March 7 to get put on it I guess. He was working with my Medicare and supplemental to get coverage I think from what he said.