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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)

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@johnbishop

Hi @lonestarmom1, Welcome to Connect. That's a good question. I do think neuropathy is a progressive condition but the real question is what does that mean in time. I don't think anyone can answer that but that's just my non medical opinion. I was also told my small fiber PN was progressive and since I don't have any pain with it, just numbness, I was told just watch it and let us know if it gets worse. So the bottom line is it really helps to be your own advocate and learn as much as you can about your condition and what treatments help provide quality of life.

Here are a couple of other discussions you might find helpful:
--- Neuropathy post-Covid infection: Is there treatment that helps?
https://connect.mayoclinic.org/discussion/neuropathy-in-feet-post-covid/
--- IVIG Infusions:
https://connect.mayoclinic.org/discussion/ivig-infusions/.
Have you started or tried any treatments for the neuropathy symptoms?

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Replies to "Hi @lonestarmom1, Welcome to Connect. That's a good question. I do think neuropathy is a progressive..."

Thank you! I’ll take a look at the links you posted. My doctor prescribed Lyrica but I haven’t taken it yet.