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Collagenous Gastritis

Digestive Health | Last Active: Nov 19 2:11pm | Replies (460)

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@ru4tarheels

Hi! Yes!!! I have had maybe 10 major upper GI bleeds over the past 7ish years. They tend to be quick and by the time they get me in to have an endoscopy, my stomach may be a little bloody but they are unable to find the source of the bleeding. I am not sure how frequently your daughter has these issues, but mine happen infrequently enough (knock on wood haha) that it appears to be a slight inconvenience in my life. The last time I had a GI bleed, my doctors got me in within ~5 hours and found an area they thought might be the location of the bleed and added clips to it. I am hoping to have another endoscopy soon to see if inflammation in that area decreased. I hope your daughter feels better!

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Replies to "Hi! Yes!!! I have had maybe 10 major upper GI bleeds over the past 7ish years...."

Thank you for your reply. I'm sorry that you also have been going through this. My daughter was diagnosed about 5 years ago and has been hospitalized around 10 times because of those bleeds. Same thing, by the time they are able to go in, they are not able to pin point where the bleed is happening. It has been such a scary and frustrating journey , not having a specific treatment or diet that helps with CG since it so rare. Have you tried any specific diets that you feel have helped you? What do you they currently have you taking ? Thank you again for your time. Hope you also feel better .