Replies to Hello, My darling husband, age 72, was diagnosed with a well-defined NET on his ileum this…

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Neuroendocrine Tumors (NETs) | Last Active: Apr 17 5:51pm | Replies (384)

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@emmepoppins

Hello,
My darling husband, age 72, was diagnosed with a well-defined NET on his ileum this past fall. It was discovered because a crash on his electric bike required a CT scan. His tumor was biopsied at UVA Med.Center, and now he is being seen at MDAnderson. We live in El Paso, TX. He has a grade 1 tumor, but his mesentary" lit up like a Christmas tree" on another CT scan with PET dotate; there were many lymph nodes. Further biopsy of a lymph node in the left supraclavicular area revealed metastasis from the ileal tumor. He is waiting for a treatment plan from his doctors. He is very nervous about this cancer growing in his body. When he was at MDAnderson in Dec. he contracted covid and has a hard time recovering from that. He has a persistent cough and prepetually feels cold. He is finally getting his strength back, slowly and surely, but has too much anxiety. Anyone out there like him?

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Replies to "Hello, My darling husband, age 72, was diagnosed with a well-defined NET on his ileum this..."

rebecka93 | @rebecka93 | Feb 17, 2023

Hello @emmepoppins ,
So sorry to hear of your husband's diagnosis. My son has also been diagnosed with a grade 1, well-defined GI NET. He has had numerous CT scans lately due to other serious GI problems, and "cysts" were seen on his kidneys and spleen. We are waiting for the PET dotate test to determine is the cysts are actually NETS. But similar to your husband, my son's mesentery was described as highly usual, during a laparoscopy. We are worried that the NETs have spread to his mesentery. And lastly, I have constantly felt EXTREMELY cold since having Covid 2 years ago. But just in the past few months, it seems to have improved. It may be a long side effect of the illness, but will eventually recover. Tell your husband to be strong; there is much hope and successful treatment for NETs! He is fortunate to have your love and support.

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