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DiscussionLost with no confirmation of NETs origin: Innumerable liver lesions
Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)Comment receiving replies
Replies to "@hollywood817 What prompted the biopsy, did You have imaging done before. I have plenty of liver..."
I was in for a healthy heart check and spots were seen my liver. I promptly had scans done and was told I needed a liver biopsy which confirmed Neuroendocrine, origin point was found to be the small intestine.
@margaret12 I had fatigue and stomach issues (cramping and diarrhea) off and on beginning in August. I had Covid in June and again in July and assumed the symptoms were long Covid. My PCP ran blood tests in October and my ferritin count was 3x normal, which can occur when the liver has been compromised. High ferritin counts can be rectified by blood donations which is the path we took. But my PCP, a saint in my eyes, wanted to be certain no harm had come to the liver from the high ferritin count so she had me get an ultrasound of the liver which showed some spots. We then had a catscan done on 12/21 which confirmed the spots followed by a biopsy on 1/5. All 3 steps happened within 3 weeks. The biopsy came back "cancerous" for LiverNET which fortunately is slow moving. I've since had an ultrasound and catscan of my heart as the increased hormones which occur with liverNET can cause your aorta to thicken. Both of those tests came back "normal". I've been eating well (no red meat) and drinking 80-100 oz of H2O daily as well as 12 oz of Chaga tea (a mushroom which helps with liverNET. Also haven't had any alcohol since ultrasound diagnosis on 12/19 and suspect my love of red wine to be something I won't taste again...and that's ok. The medicinal mushrooms haven't been extensively tested on humans but as long as I don't drink too much of the tea (toxins) I feel I'm ok. Note I did have a few weeks of waiting for my shot of lanreotide and felt I needed to do something to address the cancer. Since drinking the chaga tea the mild pain I had when taking deep breaths has dissipated. Placebo effect? Maybe. But I feel better. I exercise daily (fast walk, core and light weights, I've run 20 marathons/ultramarathons) and am a 62 yr old male who at 5'10" 170 lbs feels great. I wish you well in your journey. You will definitely beat this thing! Stay positive...life is a journey and I'm here to assist you with yours in any manner possible.