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Polymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Sep 10 12:05pm | Replies (1906)Comment receiving replies
I'm still waiting to see a new rheumatologist in early March. Back at 15 mg Prednisone daily, anything else and I hurt too much. The 15 was working for a few weeks but something else (?) set off my immune system. Lots of fatigue. I wake up with the 'Tin Woodman' syndrome, very stiff from head to toe and feeling like I'm being beat with a club. I take my morning Prednisone; if I don't feel better in a few hours, I'll take some NSAID. Usually I'm hurting again by the evening.
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@richardab I am sorry to hear about your pain. Is your prednisone at a sufficiently high dose? I am 2 plus years in and tapered to 3 mg after being at 1 mg where I was back to Tin Man status. Chemistries went high again as well. Can you pursue discussion about trial of upping prednisone while you await your rheumatologist? There is no rhyme or reason at times to this disease. I have experienced "doing everything right" only to have things go south. Very dispiriting. One day at a time. Good luck.