@k8lyn23 i was diagnosed on 1/5/23 via a biopsy with approx 25 cancerous lesions on my liver. It's NETliver and slow moving. I'm currently a "low" grade and a petscan on 2/10 indicated the source was the pancreas, though there are two tiny spots on the pancreas and my oncologist said I don't have pancreatic cancer. The focus right now is on the liver. On 2/15 I received my first injection of somatuline depot (generic name: Lanreotide). It's a shot I'll receive every 28 days. How does lanreotide work for neuroendocrine tumors? Lanreotide is a synthetic version of somatostatin (a somatostatin analogue) and slows down the production of hormones. This helps to control the symptoms of carcinoid syndrome and slow down the growth of the cancer. It's not a cure but allows one to control and manage the growth. Next week I have two appointments with specialist. One is a radiation oncologist and the other a specialist in oral chemotherapy. One option may be to inject radioactive beads into the liver with the objective to shrink and kill the cancer. My hope is this would then result in the ability to surgically cut out the cancer at some point in the future. The Lanreotide shot was fine when given (it's a wide needle and they inject you in the butt) that grew more painful over the course of the day. At bedtime I took two Tylenol and put a cold compress on the shot area. That dissipated the pain enough that I could sleep. Though one side effect is diarrhea and I certainly had my share of that during the night. I agree with the individual who advised you to bring a note taker. I've been keeping a journal of how I feel daily, notes from hospital visits, and food intake and results Diarrhea has been issue for me and was one symptom that drove my PCP to focus on the liver this past fall. Knowing what does or doesn't upset your stomach is key to feeling better. I feel fortunate to have a plethora of excellent Dr's in the Northern VA area and the two specialists I'm meeting with next week both called to introduce themselves. The plan is to do another petscan in May or June to see how I'm progressing. I hope this info helps. I'll post again after next week's appointments. Hugs to youk8lyn23 i was diagnosed on 1/5/23 via a biopsy with approx 25 cancerous lesions on my liver. It's NETliver and slow moving. I'm currently a "low" grade and a petscan on 2/10 indicated the source was the pancreas, though there are two tiny spots on the pancreas and my oncologist said I don't have pancreatic cancer. The focus right now is on the liver. On 2/15 I received my first injection of somatuline depot (generic name: Lanreotide). It's a shot I'll receive every 28 days. How does lanreotide work for neuroendocrine tumors? Lanreotide is a synthetic version of somatostatin (a somatostatin analogue) and slows down the production of hormones. This helps to control the symptoms of carcinoid syndrome and slow down the growth of the cancer. It's not a cure but allows one to control and manage the growth. Next week I have two appointments with specialist. One is a radiation oncologist and the other a specialist in oral chemotherapy. One option may be to inject radioactive beads into the liver with the objective to shrink and kill the cancer. My hope is this would then result in the ability to surgically cut out the cancer at some point in the future. The Lanreotide shot was fine when given (it's a wide needle and they inject you in the butt) that grew more painful over the course of the day. At bedtime I took two Tylenol and put a cold compress on the shot area. That dissipated the pain enough that I could sleep. Though one side effect is diarrhea and I certainly had my share of that during the night. I agree with the individual who advised you to bring a note taker. I've been keeping a journal of how I feel daily, notes from hospital visits, and food intake and results Diarrhea has been issue for me and was one symptom that drove my PCP to focus on the liver this past fall. Knowing what does or doesn't upset your stomach is key to feeling better. I feel fortunate to have a plethora of excellent Dr's in the Northern VA area and the two specialists I'm meeting with next week both called to introduce themselves. The plan is to do another petscan in May or June to see how I'm progressing. I hope this info helps. I'll post again after next week's appointments. Hugs to you.