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I can't get properly diagnosed and I'm spiraling

Neuropathy | Last Active: Feb 19, 2023 | Replies (35)

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@yojimbob

dave130
Your story sounds identical to mine . I am 16 days post- op .
I was told for 8 years I had neuropathy . I am afraid that going undiagnosed for so long that a lot of the damage may be permanent also .
How long ago was your surgery ?
Did you have any improvement after the surgery ?

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Replies to "dave130 Your story sounds identical to mine . I am 16 days post- op . I..."

It’s been a little over two years since my surgery. My neuropathy started setting in about 2 months before. I was also losing range of motion and started falling. I lost my ability to write. After surgery I regained some of my range of motion but not all. Balance has improved some, but I have to use a cane or walker to be sure about not falling (also lumbar stenosis issues contributing to my standing/walking issues). I regained strength in my grip and some hand dexterity returned, but still can’t write very well. The neuropathy (hands, arms, feet, legs) has just gotten worse and I have tremors in my left arm. My neurosurgeon confirmed I have some spinal cord damage from the compression likely causing these ongoing issues.

Everybody’s recovery is different. As your surgery heals you hope to get better. Full healing is about a year, so at 16 days you should still have a lot of hope. I wish you the best of outcomes.