I have unbelievable pain almost constantly now on my left ischium bone and on my left thigh and outside edge of my left foot, and my tailbone from lying in bed hurts and is now burning and numb feeling I was just diagnosed with a severe case of congested pelvic condition that they said was called Nutcrackers Syndrome
There are Only a few Doctors who can treat it, unfortunately, and after finally getting a appointment a couple weeks ago to see the only one in Washington they had to push me back another month and told me I would have to go to ER if it gets unbearable worse. I am crying

Hi reading your message and it sounds a lot like my life, how can this happen? I don’t know if my leg and foot pain is all part of my recent diagnosis of (Nutcrackers syndrome) A rare vascular condition, and no doctor appointment available till late April, I am not able to get comfortable even with heat, ice, rest, ext.
I can’t sit down or it feels like there is big rock 🪨 on my tiny ischium bone( on left side, even lying down now hurts, rare ichiofemoral hip impingement syndrome they just found too, my doctor has referred me to a specialist currently waiting on seeing a Vascular Surgeon that knows how to treat this terrible so called Morbid condition, it’s really caused A nightmare for me , I can share more because I found out that it’s caused Everything from heart attacks out of no where, no kidding I would be fine and go to bed and wake up sweating and become nauseous and couldn’t stop vomiting. This went on for a couple years, doctors said at the time they figured it was from stress., even sent me to see a psychiatrist, lol. I haves kidney stones, UTI’s, Pelvic congested syndrome,, I was diagnosed in my early 20s, and had a hysterectomy in 2003, for large cyst., and painful periods I was having.
Also I was diagnosed after becoming gravely Ill 😷 with Graves Disease I was treated for in my radioactive iodine for this and have been on Thyroid hormone replacement therapy ever since to replace the one removed from radiation treatment

I have a lot of unanswered questions , concerns and fears regarding about what’s next for me because my disease has gotten worse, I spend more time in bed and called about getting a air mattress because of my pain, I have no subcutaneous fat, and was diagnosed with Lipodystrophy syndrome. I’m sorry for rambling on

Hi reading your message and it sounds a lot like my life, how can this happen? I don’t know if my leg and foot pain is all part of my recent diagnosis of (Nutcrackers syndrome) A rare vascular condition, and I am not able to get comfortable even with heat, ice, rest, ext.
I can’t sit down for very long or it feels like there is big rock 🪨 on my ischium bone( on left side, and my foot, on the left side, very painful, I can’t stand or walk very fast or far , my PCP thought I had a Neuroma on my foot and sent me to Podiatrist who said this was not a neuroma, and a recent diagnosis of rare ichiofemoral hip impingement,( imaging from MRI ), sudden unexpected pain shout down from Inside my groin area down inside my leg on the right, I never been so scared , my doctor referred me to a orthopedic specialist who has done injections now to calm down my nerves. With minimal pain relief. I’m currently waiting on seeing a Vascular Surgeon that knows how to treat this terrible so called Morbid condition, Nutcrackers it’s really caused A nightmare for me , I can share more because I found out that it’s caused Everything from heart attacks out of no where, (no kidding) I would be fine and go to bed and wake up sweating and become nauseous and couldn’t stop vomiting. This went on for a couple years, doctors said at the time they figured it was from stress., even sent me to see a psychiatrist, lol. They would be stumped as to why my heart ❤️ was going crazy even told me I had a rare tumor called a Pheochromocytoma, but I don’t know, the doctor said she saw it on my kidney and ordered another test, I do have something on my kidney that always shows up, however shows no changes I had kidney stones, UTI’s, Pelvic congested syndrome, I and had a hysterectomy in 2003, for large cyst., and painful periods I was having.
Also I was diagnosed after becoming gravely Ill 😷 with Graves Disease I was treated for in my radioactive iodine for this and have been on Thyroid hormone replacement therapy ever since to replace the thyroid gland removed from radiation treatment
I have a lot of unanswered questions , concerns and fears regarding about what’s next for me because my disease has gotten worse, I spend more time in bed and called about getting a air mattress because of my pain, I have no subcutaneous fat, and was diagnosed with Lipodystrophy syndrome.
Have had lots of Tendonitis in joint and inflammation, I have Osteoporosis and have had spinal fusion at L5- S1, cervical fusion C3-C4, multiple finger surgeries from Trigger finger release and hand surgeries, 3 shoulder surgeries, and a few more!
From my understanding of the new diagnosis now more test and possible biopsy samples, stents, rearrange the whole vascular system IDK