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Giant Cell Arteritis Diagnosis

Polymyalgia Rheumatica (PMR) | Last Active: Nov 3, 2023 | Replies (50)

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@katclub

Thank you. My first Acterma injection tonight. Fingers crossed. Bloodwork in 2 weeks, taking the 60milligrams of prednisone too, hope that will be reduced in a month.

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Replies to "Thank you. My first Acterma injection tonight. Fingers crossed. Bloodwork in 2 weeks, taking the 60milligrams..."

Good news on the Actemra. Just one word of caution reduce Prednisone very slowly. Once I got to 20 which I was on a very long time I reduced by 2.5 and it would take a couple of weeks before I felt OK. I have bruising on my lower legs all the time. GCA is a vasculitis, and I had a tendency to varicose veins.

So I started at 60. Wanted to go to Mayo but couldn’t function at 60 so Doctor reduced to 40. Got to Mayo ok and continued to reduce real slow. Long time on prednisone. But you don’t have to d o 60 for long. It’s tough.