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Replies to "I first noticed SFN about 2017. It has progressively gotten worse. It hurts for me to..."
Neuropathy | Last Active: Feb 27 10:24am | Replies (39)
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I first noticed SFN about 2017. It has progressively gotten worse. It hurts for me to walk or stand. I find Kuru shoes to help with the pain. I have tried several drugs and none really work. I am sure in the future I will have to start a life of opioides to control the pain. There is no cure and it is progressive. It is what it is. I have never had any swelling. My feet are actually physically fine. The nerves are just sending the wrong signals. I was officially diagnosed in 2018. They did lots of tests and have no idea what the underlying cause is. Unless there is some stemcell treatment this is just the life I have.
Replies to "I first noticed SFN about 2017. It has progressively gotten worse. It hurts for me to..."
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Hello @repstein713, Welcome to Connect. My small fiber neuropathy is also idiopathic but I only have numbness and no pain. They think mine is probably hereditary. I posted my story in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/.
I also have difficulty walking and standing for very long but it's more back pain that anything else. You are right about no cure and it is what it is but I wouldn't give up on your search for something that helps provide some relief. Each of us are a little different and there are a lot of different complementary or alternative treatments and therapies that might help. So it's good to do your own research. Here are a couple of sites that I think might be helpful.
--- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
--- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.
It's really good to hear that your feet are OK. Have you had to make any lifestyle changes due to your SFN diagnosis?