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Lost with no confirmation of NETs origin: Innumerable liver lesions

Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)
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@kellysg

My cancer is Stage IV, but I can't find anything about the staging of my tumor...

Is yours Carcinoid as well, or something else?

Hope you are doing well with the PRRT! I only experienced fatigue, which got worse with each treatment, and hair thinning, but not drastic enough I had to do anything about it. I also noticed my appetite was crazy, I was hungry ALL the time!

I just found out this morning that Mayo Clinic approved me for a second opinion. I want to make sure I'm on the best treatment plan, and my oncologist suggested I check with Mayo.

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Replies to "My cancer is Stage IV, but I can't find anything about the staging of my tumor......"
pjsheridan2022 | @pjsheridan2022 | Feb 16, 2023

I’m stage IV grade 2. Neuroendocrine, Primary in small intestine, metastatic to liver and other areas. Diagnosed in Feb, 2022. Having treatments at Mayo, Rochester. Basically only feel flu like for 5-7 days post PRRT 3 down 1 to go.

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