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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 15 hours ago | Replies (7051)

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@rwinney

Hi there @sue15, welcome. I'm glad John brought me into the conversation. I'm sorry to hear you are struggling with central pain syndrome aka central sensitization syndrome (CSS). How long has it been?

It's difficult to know how to treat your body when it acts as a loud speaker due to hypersensitivity. Although I don't have arthritis, I was diagnosed formally with CSS after years of not understanding what was wrong. I went through a 3 year period where pain intensified from mitigating factors like neuropathy, migraine, eye disease. I very much can relate to having pain throughout my body and finding it difficult to exercise. There is a spiral effect that happens and its called the "cycle of pain". It includes behavioral and emotional changes, physical changes, insomnia, withdrawal, depression, anxiety, etc... the list goes on.

Do you mind sharing a bit more of your story and what approaches you've tried for pain management? What sort of team or support system do you have in your corner?

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Replies to "Hi there @sue15, welcome. I'm glad John brought me into the conversation. I'm sorry to hear..."

It started two years ago. We moved to a new house (old 1949) and we’re near a canyon and mountains. I have 2 knee replacements that were FINE for 10 years and then one started hurting. My doc said do PT the implants are fine. 2 weeks later my other knee started in pain. Then I had severe pain in my stomach. Lots of tests were done and I was getting worse. My doc is a pain specialist at IHC Layton Pain Management Clinic in Utah. Now I’m starting a low dose of cannabis gummies.

I have lots of friends. I can walk. I do meditating and listen to Soothing Pod. I eat healthy. I have pain in my head. What is happening to my head at this time. Hand arthritics a big deal. Fortunately, the Volatran cream helps my hands. I take walks on sunny days.